Research
Interpreting the Meaning of Existence for the Person with Motor Neurone Disease, and their Family Carer(s)
Harris, D. (2021) Interpreting end-of-life experiences of the person with motor neurone disease. Palliative and Supportive Care, 1–2.
https://doi.org/10.1017/S1478951521000699
Harris, D.A. Jack, K. and Wibberley, C. (2020) The need to consider ‘temporality’ in person-centred care of people with motor neurone disease (In press). Accepted Manuscript, 4th June 2020, European Journal for Person-Centered Healthcare.
Harris, D.A. Jack, K. and Wibberley, C. (2019) Making her end of life her own: further reflections on supporting a loved one with motor neurone disease. International Journal of Palliative Care Nursing, Vol 25, No.6, 284-292
https://doi.org/10.12968/ijpn.2019.25.6.284
Harris, D.A. Jack, K. and Wibberley, C. (2018) The meaning of living with uncertainty for people with motor neurone disease. Journal of Clinical Nursing, 27, 2062-2071.
https://doi.org/10.1111/jocn.14350
Harris, D.A. (2017) Doing research drawing on the philosophy of existential hermeneutic phenomenology. Palliative and Supportive Care 15, 267–269.
https://doi.org/10.1017/S1478951516000377
Harris, D.A. (2017a) Supporting a loved one living with motor neurone disease. Palliative and Supportive Care 15, 141–142.
https://doi.org/10.1017/S1478951516000134
Harris, D.A. (2015) Lived-through past, experienced present, anticipated future: Understanding “existential loss” in the context of life-limiting illness. Palliative and Supportive Care 13, 1579–1594
https://doi.org/10.1017/S1478951515000620
The findings of the research are collated and integrated to develop a person-centred model of care that emphasises the need for MND professionals to acknowledge the temporal aspects of caring for a person with MND, and for their family carers.