Education

End of Life Care

Developing knowledge and understanding of the proposed temporal model of care. This will support nurses and other health care professionals to focus their conversations on what is important to the person. This may be their lived-through past, their experienced present, or their anticipated future. A person who has motor neurone disease (MND) and other neurological condition(s) will, through this model, be encouraged to direct the focus of the conversation.

e-Learning course

In this course, you will meet other motor neurone disease (MND) and other neurological care professionals, share your experiences, join in active discussions, and develop your knowledge and skills.

What you will achieve

• You will get the opportunity to develop an understanding of care for neurological disorders.

• Apply new knowledge, use case study analysis, and evaluate with peers.

• You will also get the most out of your learning by engaging with the content and the other learners through the comments section.

On this e-Learning course, we will cover

Week 1

Background

Learn about the Why?

MND is a devastating neurodegenerative terminal condition that results in loss of the motor neurones that enable a person to move, speak, and at the end of life, to breathe. At the outset of this project, previous research had focused on the narratives of people living with MND at a single point in time; thus knowledge of the meaning of existence with MND through time is limited.

Week 2

Investigating

Learn about the What?

This is a multiphase study that uses two distinct methodologies: hermeneutic (interpretive) phenomenology and autoethnography to explore the lived experiences of self and others. The three key areas of study are (i) the phenomenon of existence when someone is given a diagnosis of MND and in the context of receiving healthcare; (ii) the meaning of living with uncertainty for people diagnosed with MND; and (iii) the meaning of supporting a loved one with MND as they die.

Week 3

Developing Knowledge

Learn about the How?

This is a multiphase study that uses two distinct methodologies: hermeneutic (interpretive) phenomenology and autoethnography to explore the lived experiences of self and others. The three key areas of study are (i) the phenomenon of existence when someone is given a diagnosis of MND and in the context of receiving healthcare; (ii) the meaning of living with uncertainty for people diagnosed with MND; and (iii) the meaning of supporting a loved one with MND as they die.

Week 4

Implementing

Learn about the When?

You will share a case study with the group and how you can change your practice through your understanding of the Temporal Model of Care.

SERVICES

If you would like to learn about the recommended temporal model of care, please book on using the button below. O Contact us for further information using the form below.

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TESTIMONIALS

“I recently completed a 4-session course with Denise Harris;

I can tell you it was extremely worthwhile. She and I have been doing essentially the same interventions with MND patients, but she had it organized and structured in a highly beneficial way. She also provided new insights which will facilitate improved interactions with my patients. Her articles are invaluable for continuing in this field. It is rare to find someone with such an understanding of the needs of these patients and I expect to maintain an ongoing relationship with her. ”

BARBARA SIMMONS / PhD PSYCHOLOGIST / ALS FAMILY CENTRE, UNIVERSITY OF MIAMI